Being an advocate for your child

Kiran of KarmicKids came up with the idea ofdedicating March as a "Learning Disabilities Month" in our little corner of the blogworld. I already wrote about ADHD (Attention Deficit Hyperactivity Disorder), how it is related to Learning Disabilities and how it is different from them. This post is on how we can help our kids by being their advocates.

Disclaimer: I have put together these posts with help of online research. I am NOT an expert on the matter. These are just my personal views. If you have any concerns that your child might have a learning disorder, please voice them to your child's doctor immediately.

When S was little, she had run ins with a few kids who would bully her. I was too timid at that time to correct the bullies because I thought disciplining other people's kids was not my job or my place. And I sincerely believed that all parents wanted their kids to behave well and so they would stop their kids from bullying others. What a fool I was!! Over time, and with experience, I have learned that is not always the case. I have to discipline other people's kids if they hurt my child and if their own parents are turning a blind eye. I owe it to my kids. If I won't protect them, then who would? And not all parents are as obsessed with good behavior as I am.

I have had a few arguments over this topic with a few friends. One says it is her job to step in to negotiate/manage a situation whenever her child is being bullied/picked on. A few others say they totally believe in teaching their kid to hit back when he/she is bullied. Now I don't agree with any of them. I don't disagree completely either. It is my job to step in until my child is old enough to learn to stand up for herself. And it is my job to help my child learn how to resolve such situations without being mean or nasty. That, I think, is a good life skill to have. And I definitely think every child should know self-defence for extreme situations. I certainly do not think it is appropriate of me to tell my child to hit back everytime she is hit or bulllied. I think that should be reserved for when everything else fails.

I have learned one thing as a mom. That a parent is the only advocate a child has. Everywhere. On the playground. At a party where another kid is subtly picking up on her and the parents of that kid are studiously ignoring their child's behavior. At school.

All of us know that if our child is ever diagnosed to have learning disabilities, he/she will need our staunch support to get through school. All the support we can give him/her, all our understanding and love. All our patience. All our courage - in defending him from well-meaning and not-so-well-meaning teachers. And surprising as it may sound, even if our kid is among the top five in the class, he/she still needs us to be their advocate. I learned that the hard way. And I mean to share my experience here just in case it might help someone else. I will also share a few resources about being an advocate for a child with learning disabilities.

S has always been good at academics. We have always gotten glowing reviews from her teachers, right from pre-school. She has always been ahead of her grade level in reading, writing and math. So one would think that a teacher would recognize that intelligence and recommend her for an advanced program if she qualified, right? Wrong! S' school has an Academically Talented program for kids who are ahead of the rest of the class. I always thought she would get recommended if she was good enough for the program and if she didn't that would mean she doesn't really qualify. That is why I never really worried that she never got a recommendation. But in fourth grade, her teacher raved about how S should be in the AT program and how she didn't understand why she wasn't in it when so many other kids who were, didn't really deserve to be in there. She assured us that she will recommend S when the time came. The time came and went. I assumed in good faith that the teacher will keep her word. She didn't. Then, very conveniently, shrugged it off saying "The deadline is gone". That is when I realized that even if my child is a 120% eligible for something I cannot depend on someone else to help her get it unless I become her vocal and alert advocate. I mean, why would the teacher go out of her way and create more paperwork for herself by recommending a child whose parent doesn't bother to hound her? That was a big lesson learnt. I am sure M is going to benefit more because by the time she gets to kindergarten I will be a pro at this advocacy thing :P

A child with learning disabilities needs an advocate more than anyone else. Teachers and caretakers would just as easily recommend the child be pumped full of drugs to make him/her more manageable instead of putting in time and effort to manage his behavior. I am sorry for this harsh judgment because I know there are still many dedicated teachers and caretakers out there who wouldn't take this route. But it is because of those who take the easy way out instead of working with the child that I have formed this opinion.

As this article mentions it isn't always with malicious reasons that your child may be deprived of the help and support he/she needs. It may be because there aren't enough resources or maybe he/she fell through the cracks because the teacher was overwhelmed with other high-maintenance kids. We have to make sure that our child gets the help he/she needs when it is required. No matter how many times we have to send that reminder, no matter that we have to make a pest of ourselves in front of school administration by insisting our child be evaluated/helped a zillion times, no matter what else.

Another thing I have learnt in the past few years is assertiveness. Assertiveness is a quality one needs in HUGE doses to be an advocate to one's kids. Again, I learnt this from personal experience. Here is an article that talks about how to be assertive. I think this can help ANYBODY, whether or not they have children with LDs. Assertiveness is a good quality to have in any situation.

And finally, here is another article that talks about why we need to be advocates for our kids and how we can do it.

ADHD and Learning Disabilities

Kiran of KarmicKids came up with the idea of dedicating March as a "Learning Disabilities Month" in our little corner of the blogworld. I am writing about ADHD (Attention Deficit Hyperactivity Disorder), how it is related to Learning Disabilities and how it is different from them.

Disclaimer: I have put together this post with help of online research. I am NOT an expert on the matter. These are just my personal views. If you have any concerns that your child might have a learning disorder, please voice them to your child's doctor immediately.

ADHD: What is it?

ADHD, or Attention Deficit Hyperactivity Disorder, also known as ADD (Attention Deficit Disorder) is the name of a group of behaviors found in many children and adults. Kids and adults who have ADHD have trouble paying attention to anything they do and are more impulsive and/or active for what is usual for their age.

ADHD is characterized by presence of one, two or all three groups of behaviors - inattention, hyperactivity and impulsiveness. Based on the symptoms that a child shows, his/her ADHD can be categorized into

1. ADHD, Inattentive type,

2. ADHD, Hyperactive-Impulsive type and

3. ADHD, Combined Type. According to the Learning Disabilities Association of America following are the symptoms and signs of ADHD, and also strategies to help children with ADHD:

Symptoms and signs

1. Fails to give close attention to details or makes careless mistakes
2. May have poorly formed letters or words or messy writing
3. Has difficulty sustaining attention in tasks or play activities
4. Does not follow through on instructions and fails to finish schoolwork or chores
5. Avoids or strongly dislikes tasks (such as schoolwork) that require sustained mental effort
6. Forgetful in daily activities
7. Has difficulty organizing tasks and activities
8. Loses things necessary for tasks or activities (pencils, assignments, tools)
9. Shows difficulty engaging in leisure activities quietly
10. Acts as if “driven by a motor” and cannot remain still
11. Blurts out answers to questions before the questions have been completed, often interrupts others

Strategies

1. Allow a child to change work sites frequently while completing homework or studying
2. Assign tasks involving movement such as passing out papers, running errands, watering plants
3. Use music as a tool for transitioning, song = task
4. Vary tone of voice: loud, soft, whisper
5. Stage assignments and divide work into smaller chunks with frequent breaks
6. Teach students to verbalize a plan before solving problems or undertaking a task
7. Permit a child to do something with hands while engaged in sustained listening: stress ball, worry stone, paper folding, clay
8. Use inconspicuous methods such as a physical cue to signal a child when she or he tunes out
9. Provide opportunities for student to show divergent, creative, imaginary thinking and get peer recognition for originality
10. Employ multi-sensory strategies when directions are given and lessons presented

Another site I recommend for getting more information about ADHD is FamilyDoctor. According to this site, here are the strategies to help a child who has ADHD:

1. Make a schedule.
2. Make simple house rules.
3. Make sure your directions are understood.
4. Reward good behavior.
   
5. Make sure your child is supervised all the time.
6. Watch your child around his or her friends.
7. Set a homework routine.
8. Focus on efforts, not grades.
9. Talk with your child's teachers.
   

Come to think of it, these strategies will help ANY child, won't they? Please visit the above link to see the detailed description of these points. It is easy to confuse ADHD symptoms with the normal childhood behavior. Many children are hyperactive, younger children typically have a shorter attention span and not to act on an impulse is sometimes a learned habit instead of being an inborn trait. So the mere presence of these symptoms is not an indication of ADHD. There are some other criteria for confirming a diagnosis of ADHD, which include (but may not be limited to) the following:

1. The symptoms have been present for at least six months,
   



2. They began before the child was 7 years old, and
   



3. They are causing an impairment in more than one setting, like both at home and in school.
   

Though it is natural for a parent to worry, but in this case dagnosis is best left to a professional. ADHD is NOT a learning disability but it can cause learning problems in a child. It is very important to get a proper diagnosis AND to understand how it can affect a child's learning process.

How is ADHD different from Learning disabilities?

A common misconception about ADHD is that it is a learning disability. The confusion occurs because ADHD can affect learning and as many as 30% of people suffering from ADHD also have a learning disability. There is, however, a difference. A student with a learning disability will be deficient in one or two areas while performing at or above average in other areas. ADHD, on the other hand, affects learning globally and affects all cognitive functions instead of just one or two. A student with ADHD should always be tested for learning disabilities because an undiagnosed learning disability can mimic the symptoms of ADHD. During my research on this I realized there is TONS of material out there. My post is in NO WAY comprehensive on the topic. In fact, it doesn't even begin to scratch the surface of it. It is aimed at merely creating an awareness. To find more information on it, ask your child's doctor AND Mr. Google. Here are links to the websites I took help from in compiling this post:

Learning Disabilities Association of America
Wikipedia
Centers for Disease Control and Prevention
National Institute of Mental Health

Family Doctor


Here are the other posts on this topic around the blogworld -


Kiran wrote how parents can help their child if he/she has Learning Disabilities.


Tharini has written on the different types of Learning disabilities.

Lak wrote about learning disabilities and their impact on a child's self-esteem.

Priya has written about her daughter's struggles with speech and language delay.


Girl Next Door has written about how to treat/manage Learning Disabilities.

That's all it takes

To err is human. To forgive, divine. To realize that one made a mistake and make amends - mature.

Gaurav Chopra apologized for his behavior. With chocolates. It takes guts to do so in person when one has the means to send the chocolates and a note with a courier. That it was delivered in person, makes me believe it was sincere. Good job, man!

Am I alone in feeling this way?

We attended a Holi cultural program on March 14th. It was organized by the Hindu Cultural Center of Connecticut. S had participated in a dance so we were extra eager to attend and see her performance. The performances were wonderful - all participants had put in a great deal of effort and time in preparing their presentations. And for a few hours we felt connected to the land that we had left when we came to the US to set up a new life for us here. M enjoyed all the dance performances and booed at the show presenters when they talked too much before introducing the next item :) Just one thing grated on my nerves real bad.

There were two sets of show presenters. One set comprised of two college going kids - a girl and a boy. I don't know if they were trying to be witty or if they were just annoying, but some incidents and jokes they narrated during the show left a poor taste in my mouth. The girl ranted about Indians being clubbed with all "Asians" and how we Indians are NOT Asians but only Indians and how someone should somehow just pluck India out of Asia and put it somewhere to be a continent by itself. Then she rambled on saying parents should go home tonight and teach there kids that India is NOT in Asia and those kids should go to school next day and tell their teachers that India is not in Asia. I think she was trying to be funny but she failed to tickle my funny bone. Heck she even failed to intrigue my mind enough to think hard on it. I just felt embarrassed and hoped there weren't any "other" Asians watching the show because then they might think that ALL Indian parents teach their kids this kind of narrow-range thinking.

The boy went a step further. He told a joke. A joke that made fun of India and the corruption in India. I agree we all tell those jokes. We forward them to our entire contact list in Gmail and even repeat them at parties. But to make fun of India in front of an audience who is there to celebrate an Indian festival? It felt like betrayal. VERY poor taste. I think there is a time and a place for everything and this was neither the time nor the place for such juvenile jokes.

I also think the organizers of the show should have asked the show presenters for a script of their speech before the function and made sure everything in there was appropriate to the occasion. But what I can't get over is that many people in the audience cheered when these bad jokes were made. Don't we have any pride left now? I know we are all fed up of the corruption in India and of the politicians who, instead of leading the nation, are pulling it back into the stone age. But we are still proud of our country, right? I mean all these things - corruption, power cuts, political games, poverty - they can all be conquered if we put our minds and hearts to it. And while we try to fix things bit by bit, we are still proud of our country. Aren't we?

Am I the only one feeling this way? Or are there others who would have identified with my feelings of outrage, embarrassment and betrayal had they been there?

Thinking out loud

Today, while talking to a friend about the electives that S has chosen for middle school, I said something I am sure she didn't understand. We argued briefly over it then gave up and decided to enjoy the rest of the limited time we had to chat with each other. But what I said is still going around in my head and I am sure I won't be at peace until I put it down somewhere. So, here goes....

I said I will be very disappointed if my daughter chooses arts as a career. Yep. I said that. And now I will wait for the brickbats.

While I don't think I owe any explanation to anyone for my opinion on this matter - except to S, I began thinking of my reasons. The only reason I could think of is that I am a technology-oriented and artistically challenged individual. I understand technology better. I understand the career options in technology better. If my daughter chose something that I couldn't understand or help her with... well that IS the heart of the matter, isn't it? We want to be important in our children's lives. We want to be able to "help" them with the major decisions in their lives. And we want a connection with them through our choices in life. My parents wanted me to opt for science because they were both science/engineering teachers and of course, opting for science meant you were intelligent. I don't subscribe to the latter belief myself - I am just saying how it was then.

But what I think does not matter at all. That is what my friend didn't understand. My opinion doesn't count because it is my daughter's life, hence it should be her decision. I strongly believe in parents letting their children make their own decisions. And as I am learning on this road of parenting, sometimes you even have to let your kids make wrong decisions just so they can learn from them. You have to put your confidence in them, in your own parenting. You have to believe that the foundation of values and ethics that you gave them in their childhood is strong enough to help them make sound decisions later in life. You can and should guide them, but you have to leave the final decision up to them. I certainly DO NOT mean that choosing a career in art would be a wrong decision. I am just saying what MY philosophy about parenting is - let your kids make their own decisions, let them make mistakes, and if they do make mistakes then stand by them without judging them and help them learn from their mistakes and rectify them, if possible. That is all we CAN do as parents. I have seen way too many lives ruined by well-meaning parents interfering in their children's decisions.

So while I would very much like it that S goes into a technology or science related field, if she chooses otherwise, I will still wholeheartedly support her. Yes, I'd be disappointed but NOT because I'd think her choice is inferior. Just because as a parent I'd like that extra link with her. And I won't be disappointed in her. I will try and educate myself more about her choices and maybe that will help me understand and accept them better. Maybe I'll grow up a little more by then and her career choice wouldn't affect me at all - one sure can live in hope.

Belated Thanks

Last Thanksgiving was bleak for me. No. It was beyond bleak. It was the deepest, darkest time I have ever had in my life. I still celebrated Thanksgiving with friends like I do every year. I felt that was the exact antidote for my grief. I could cope with my tremendous loss with the help of the warmth from good friends and lovely memories. The Thanksgiving before that, Ma and Pa were with us. So this one was bittersweet - bitter from the loss and sweet with the memories.

I have been meaning to write this post since then. I ALWAYS give thanks. And I feel the true test of that would be to see if I could find something to be thankful about in such bleak times. Well I did.

I am thankful for the time I did get with my father.

I am thankful that HE was my father.

I am thankful for my family - Ma, my brother, his wife who was there for me when I needed her most, her parents, J - my pillar of strength, my darlings S and M.

I am thankful for my friends.

I am thankful that Pa was here to see my second child and enjoyed being with her.

I am thankful that he didn't suffer much.

I am thankful for all the friends and family members - uncles, aunts and cousins, my BIL and SIL, who rallied around us in our darkest hour.

I am also sad and sorry about a few things but I certainly am thankful for all that I have. Lord, please never let me forget that.